Living with a Fontan Heart: A Family's Journey

The Fontan procedure has revolutionized the outlook for individuals born with a single ventricle heart. Today, over 80% of these patients reach adulthood. But what does life look like for them and their families?

A Closer Look at Long-Term Quality of Life

This study delved into the long-term quality of life for these patients and their families. It's not just about survival; it's about thriving. The research aimed to understand the real experiences of these families.

Living with a Fontan Heart

Having a Fontan heart involves extensive medical care and significant lifestyle adjustments. While challenging, many families find ways to cope and even flourish. The study revealed that despite the hurdles, many patients and their families report a good quality of life.

The Ripple Effect on Families

The impact isn't limited to the patients. Parents and siblings also face adjustments. The study highlighted the importance of the entire family's quality of life. Support and understanding from others can significantly improve their journey.

A Chance at Life

Ultimately, the Fontan procedure has provided many individuals with a chance at life. However, it comes with its own set of struggles. Recognizing these challenges can help families access the support they need.