Managing Pain in Cystic Fibrosis: Expert Guidelines for Better Care

Living with cystic fibrosis (CF) can be tough, but it doesn't have to be so painful. From birth, many people with CF deal with both disease-related pain and pain from medical procedures. This pain can really affect their health, daily activities, and overall happiness. Surprisingly, there aren't any specific guidelines to help doctors and families manage this pain. So, the Cystic Fibrosis Foundation (CFF) brought together experts like doctors, researchers, people with CF, and caregivers to create some helpful rules.They looked at lots of research and got expert opinions to make 13 suggestions. These suggestions focus on using different methods to manage pain, offering age-appropriate assessments and treatments, treating any other health issues that might cause or worsen pain, being sensitive to how society views pain, especially for people from minoritized groups, and considering issues like access and cost. The goal is to help doctors manage pain better and improve the lives of people with CF at any stage of their illness.