Cerebral palsy (CP) can make it tough for teens to enjoy leisure activities, especially those who have severe mobility issues. These teens are often classified at levels IV and V on the gross motor function classification system (GMFCS). This means they have significant challenges with movement and coordination. It's crucial to find ways to help them participate more in fun activities.

One effective approach is to involve these teens, their families, and healthcare professionals in creating solutions. This collaborative effort can lead to better outcomes. Tools like the Involvement Matrix (IM) can make this teamwork easier. The IM helps everyone work together to design interventions that truly meet the needs of the teens.

A recent effort focused on improving leisure activities for teens with CP at GMFCS levels IV and V. The goal was to co-design an intervention that would enhance their participation in fun activities. By working together, the teens, their families, and healthcare professionals could create something meaningful. This approach ensures that the solutions are practical and tailored to the teens' unique challenges.

It's important to note that involving the public in research is a recommended practice. This collaborative method can lead to more effective and relevant interventions. The teens, their families, and healthcare professionals bring different perspectives and expertise to the table. This diversity of thought can result in more innovative and impactful solutions.

Involving teens with CP in the design process has several benefits. It empowers them and gives them a voice in decisions that affect their lives. It also ensures that the interventions are realistic and address their specific needs. This collaborative approach can lead to better outcomes and improve the quality of life for these teens.

CEREBRAL PALSY RESEARCH

Helping Teens with Cerebral Palsy Enjoy More Fun

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