Imagine trying to use a map from the 1950s to navigate a city today. It wouldn't work, right? The same goes for health-related quality of life (HRQoL) value sets. These sets help figure out how many quality-adjusted life years (QALYs) people might gain from healthcare. But, many of these value sets are old and outdated. This is a problem because they might not r...
Pompe disease is a tough one. It's a rare condition that kids inherit, and it messes with the body's ability to break down sugar. This leads to a lot of muscle problems. Researchers wanted to find out how this disease affects kids' daily lives and how tired they feel. They did this by asking the kids and their parents about their quality of life and energy levels. F...
In Iran, where tradition and faith greatly influence families -- something true to many cultures -- understanding the different stuff that goes on in Iran households is essential. But here’s the twist: not much has been looked into understanding how spirituality and gender affect happiness and well-being of Iranian couples. Iran is a big country with a huge popu...
Did you know that not moving around enough can be a serious problem for your health and thinking skills? This is especially true for people with cognitive impairment, which is a fancy term for issues with thinking, remembering, and understanding. In Australia, there's a big question mark over how exercise affects the daily life quality of these individuals. It's a ...
You might be wondering how people living with HIV in Spain feel about their health and quality of life. The CoRIS cohort, a group of HIV patients from different parts of Spain, was studied to find out just that. We wanted to know how these people rate their health and what factors affect it. Plus, we looked at how their feelings about their health changed over a shor...
Imagine you're living with a skin condition like atopic dermatitis, hidradenitis suppurativa, pemphigus, or psoriasis. How does it affect your daily life? Researchers recently explored this question by comparing how patients with these conditions rate their health-related quality of life (HRQoL). They looked at data from outpatients collected between 2015 and 2021. ...
Imagine you have more than one long-term health condition. Maybe you're dealing with diabetes and high blood pressure, or perhaps it's arthritis and heart disease. This isn't unusual. Many people have what's called multimorbidity, which is just a fancy word for having multiple long-term conditions (MLTCs). But how do these groups of conditions affect our daily lives ...
Ever wondered how changing daily habits can transform the lives of women going through menopause? A recent study explored this by looking at the impact of a therapeutic lifestyle modification (TLM) program on the health and well-being of perimenopausal Chinese women. This trial was designed to see if making small lifestyle changes could enhance their quality of life,...
Sickle cell disease (SCD) is a serious health issue that can lead to many health problems and even death. A possible treatment is hematopoietic stem cell transplantation (HCT), which can improve the lives of those with SCD. But HCT is not easy; it can be physically and emotionally tough. This study wanted to know what young people and their parents thought about HCT ...
After hip and knee replacements, doctors want to know how much better patients feel. This study looked at a big group of people to find out how much improvement in quality of life is important for patients. They used a special tool called EQ-5D-3L to measure this. The results are helpful because they show what changes in health are meaningful for patients, even consi...