PATIENT REPORTED OUTCOMES

Jun 15 2025HEALTH

The Hidden Struggles of Teenagers with Spinal Curvature

Teenagers with adolescent idiopathic scoliosis face many challenges. These teens have a side-to-side curve in their spine. This condition can affect how they feel about themselves and how they interact with others. It can also impact their physical abilities. To understand these effects, researchers used surveys filled out by the teens themselves. These surveys, kno...

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Jun 15 2025HEALTH

New Hope in Nighttime Blood Disorder Treatment

In the realm of medical research, there's a lot of talk about a condition known as paroxysmal nocturnal hemoglobinuria. This is a rare blood disorder that can cause red blood cells to break down too quickly. This can lead to anemia, which is when the body doesn't have enough healthy red blood cells to carry oxygen to the tissues. Patients with this condition often ...

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May 31 2025HEALTH

Unraveling the Long Road of Alzheimer's Disease

There is a huge gap in understanding the journey of Alzheimer's disease and related dementias (ADRD). It takes 20 to 30 years for these conditions to fully develop. This makes it tough to track the entire process. Most studies focus on specific groups, which might not reflect real-life experiences of patients. To tackle these issues, a new approach was taken. The ABO...

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May 30 2025HEALTH

The Need to Expand What We Mean by Value in Cancer Trials

Cancer trials typically focus on how well a treatment works and how safe it is. But there's more to consider. Patients also deal with how treatment affects their daily lives, their finances, and the time it takes. These factors are just as important. They can greatly influence a patient's experience and overall well-being. A new idea is to look at cancer trials in a...

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May 15 2025HEALTH

Long-Term Impact of Anifrolumab on Lupus Patients

Systemic lupus erythematosus (SLE) is a tough condition. It can make daily life a real challenge. Patients often face fatigue, pain, and other symptoms that affect their quality of life. Recent studies have shown that a drug called anifrolumab might offer some relief. It has been tested in two major trials, TULIP-1 and TULIP-2. These trials lasted for 52 weeks and in...

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Apr 27 2025HEALTH

How Do Cancer Patients Rate Their Quality of Life?

Cancer patients in Austria and France took part in a study. The study was about how they feel about their health. They used a special tool called QLU-C10D. This tool is designed just for cancer patients. It helps to figure out how good or bad they feel about their health. The tool looks at ten different parts of their life. These parts include things like how m...

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Apr 04 2025HEALTH

The Rise of PROMIS in Orthopedic Care: A Fresh Look

The Patient-Reported Outcomes Measurement Information System, or PROMIS, is a set of tools designed to evaluate how a person feels and functions in their daily life. These tools cover physical, mental, and social health aspects. They are useful for a wide range of conditions. In recent years, there has been a noticeable increase in the use of PROMIS measures in ortho...

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Mar 29 2025HEALTH

Mending a Torn Patellar Tendon: A New Approach

The patellar tendon is a crucial part of the knee. It connects the kneecap to the shinbone. When it tears, it can cause serious problems. This injury is not common, but it is severe. Traditional fixes often fail. The tendon can tear again. This happens because the tendon is weak. It may have scars or poor quality tissue. Doctors usually use a tendon graft to fix the...

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Mar 11 2025HEALTH

Breast Cancer Surgery: Does Fixing Both Breasts Right Away Make a Difference?

Breast cancer surgery often involves fixing both breasts at once. This is known as immediate symmetrizing oncoplastic surgery. But does this approach really make a difference in how patients feel about their bodies and their lives? A recent study looked into this question. The study focused on patient-reported outcomes, or PROs. These are the feelings and ex...

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Mar 08 2025HEALTH

Trochleoplasty: Why Stiffness Might Not Be a Big Deal

Trochlear dysplasia (TD) is a condition where the groove at the end of the thighbone (femur) that fits into the knee is not formed properly. This can lead to knee pain and instability. One way to fix this is with a procedure called Bereiter trochleoplasty (TP). This surgery can sometimes lead to stiffness and reduced range of motion (ROM) in the joint after the opera...

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